Sarah Murnaghan, the Newtown Square girl who underwent a life-saving lung transplant a year ago after a public battle in federal court, is now breathing completely on her own.
Sarah’s mother, Janet, announced on Facebook this weekend that her daughter had the tube in her neck, a tracheostomy, removed.
"She rides her bike, goes to the pool, out to dinner with the family, museums, parks, etc. She is enjoying life,” Janet Murnaghan told ABC News.
Sarah became national news last year during a battle to receive a lung transplant and defy the “Under 12 Rule,” which was preventing her from obtaining adult donor lungs.
The then 10-year-old had been on the pediatric lung transplant list for 18 months as of May 2013. But her health took a turn for the worse and doctors said she had weeks to live unless she received a transplant.
Her family went public with their battle against the Under 12 Rule. That rule gives patients under 12 priority for child lungs, but adult lungs are offered to all adult candidates on the transplant list before they can be offered to children.
If Sarah had been 12 years old, she would immediately have been eligible for the next available lungs from an adult donor.
In June 2013, a federal judge directed the transplant
network to cease application of the "Under 12 Rule" as it applies to
Sarah. Later that month, Sarah received her
transplant at the Children's Hospital of Philadelphia.